At birth, Claire was diagnosed with hypoplastic left heart syndrome. Meaning, the left side of her heart was underdeveloped. She received the Fontan Operation along with three other open heart surgeries as treatment for her disease. After the surgery she developed Protein Losing Enteropathy. Because of the severity of these diseases she cannot experience life as a normal child, such as going to school. Creating her dream bedroom is more than just a place to sleep, its where she plays, imagines and spends the majority of her time.

Claire’s DREAM was to have her very own rose garden so that she can Prune her own roses.

Dream Journal

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