13 year old Julian has x-linked adrenoleukodystrophy and basically he cannot break down long fatty chains. His illness is terminal and our goal is to fill the rest of his life up with joy! Julian’s dream is to have a “ heavenly” bedroom. He loves animals, rainbows, heavens gates, water, trees, loves listening to music, being read to and much much more!
“We are praying for a miracle and have not lost hope!”
Susan, Julian’s Grandmother