Aimee is 8 years old and has been battling Xeroderma Pigmentosa (XP) ever since she was born. XP causes a person to be extremely sensitive to the damaging effects of ultraviolet radiation. Aimee has to spend all of her life hiding from the sun whether that is inside a house with special film on the windows or choosing to go outside completely covered from head to toe. If she went outside without cover, the UVs would cause her to burn and blister very badly. She has had 26 skin cancers removed before she was diagnosed. Because she has taken serious precautions before entering the sun it has been years since she has had skin cancer.
Aimee’s DREAM was to have an Ocean Room Our goal was to create a space where Aimee could laugh, play, build with her legos, do her homework and have her very own “ocean rock” that she could climb up on and hide inside. We wanted to bring the outdoors inside for her.